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Andrea Downing

Andrea Downing is the Co-Founder and Board President of The Light Collective, a patient-led nonprofit organization.13 She is a prominent advocate for patient rights in the digital age, focusing on the intersection of health privacy, cybersecurity, and patient empowerment.1

Downing's advocacy work stems from her personal experience as a BRCA1 mutation "previvor," which led her to become deeply involved in privacy protection within the breast cancer community.2 In 2022, she helped lead The Patient AI Rights Initiative, a pioneering effort to establish patient-led voices in the development of Health AI.1

Her work includes:

  1. Creating safe online spaces for individuals to share experiences without compromising privacy.2
  2. Advocating for patient rights in healthcare technology development.3
  3. Raising awareness about privacy and security risks in online patient communities.23

Downing is also a board member of CancerX, a public-private partnership dedicated to boosting innovation in the fight against cancer.1 Her efforts have led to invitations to speak at various meetings and panels about patient involvement in shaping healthcare technology policies.3

Highlights

Aug 7 · linkedin

I love this piece featuring Sara Riggare and Liz Salmi!

Excerpt: " To truly change culture, ‘patient-led’ models have been proposed, where patients lead or co-lead on research from the very outset of investigations, determining what questions are asked and how they are addressed. There are glimmers of hope that patients’ contributions are increasingly being taken seriously."

#BeLikeLight

cc: Hugo Campos Grace Cordovano, PhD, BCPA Grace Vinton Erica Olenski ✨ Health AI Partnership UCSF Coordinating Center for Diagnostic Excellence (CoDEx) Chethan Sarabu, MD, FAMIA, FAAP Ryan Prior Christine Von Raesfeld 💜 Matthew Might Maya Rockeymoore Cummings, Ph.D. (she/her) Amy Price MS, MA, MS, DPhil. Maryam Lustberg Danielle Bitterman Maimah Karmo

Jun 2 · linkedin

For those interested to learn about healthcare cybersecurity, the Cybermed Summit is just around the corner! Hosted by top experts in health cybersecurity and co-founded by white hat hackers from I Am The Cavalry, this event is a must-attend.

Researchers, health systems, clinicians, and patient advocacy groups, mark your calendars for Thursday, June 13, from 8 am to 5 pm EDT at George Washington University in Washington DC.

Don't miss this opportunity to learn and connect, regardless of your level of expertise in cybersecurity.

https://lnkd.in/gDEN4ZMm

Grace Cordovano, PhD, BCPA Grace Vinton Michael Mittelman Laura Adams Mark Sendak Eric Perakslis PhD Joshua Corman Jeff Tully Karandeep Singh Rachit S. Chad Waters Jennifer Goldsack Troy Tazbaz Matt Abrams Sari Kaganoff Maia Hightower, MD, MPH, MBA

#Cybersecurity #Healthcare #CybermedSummit #BeLikeLight

Related Questions

What inspired Andrea Downing to co-found The Light Collective?
How does Andrea Downing's personal experience as a BRCA1 mutation "previvor" influence her work?
What are the main goals of The Patient AI Rights Initiative led by Andrea Downing?
How does Andrea Downing address health privacy concerns in digital spaces?
What role does Andrea Downing play in CancerX?
Andrea Downing
Andrea Downing, photo 1
Andrea Downing, photo 2
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Location

Eugene, Oregon Area