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Anna Kole

Rare Diseases

Anna Kole is a highly skilled public health professional with over a decade of experience in international health education, communication, fundraising, advocacy, and policy-making to support vulnerable populations around the world.

Equipped with dual nationality and fluency in three languages, Anna excels in facilitating understanding and communication, demonstrating empathy and sensitivity in addressing complex issues within multicultural environments.

She holds a Master's in Public Health with a focus on Maternal and Child Health from UNC Gillings School of Global Public Health and a Bachelor's degree in Biology and Genetics from Skidmore College.

Anna has held key positions in various reputable organizations, including Global Patient Engagement Lead at UCB, Founder of The Charity Shop in Paris, Public Health Policy Director at EURORDIS (European Organisation for Rare Diseases), and roles at other prestigious institutions such as the National Organization for Rare Disorders and Planned Parenthood.

Her extensive work experience encompasses expertise in patient engagement, healthcare consulting, policy development, and project management within the public health sector, particularly focusing on rare diseases and maternal health.

Anna Kole's career highlights her commitment to promoting public health, supporting underserved populations, and advocating for health policies that benefit marginalized communities worldwide.

Highlights

May 16 · Nature.com
Time to diagnosis and determinants of diagnostic delays of people living with a rare disease: results of a Rare ... - Nature.com
Time to diagnosis and determinants of diagnostic delays of people living with a rare disease: result
Feb 28 · Financial Times
Data sharing holds key to progress on rare diseases in Europe - Financial Times
Anna Kole
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Location

Greater Paris Metropolitan Region