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Keith McArthur

Rare Disease Advocate | Author | Podcaster

Keith McArthur is the CEO and Head of Science at CureGRIN Foundation, a parent-led organization dedicated to improving the lives of people with GRIN disorders.12 He became involved in rare disease advocacy when his son Bryson was diagnosed with a variant in the GRIN1 gene after years of missing developmental milestones.1

McArthur brings extensive leadership experience from both the business and non-profit sectors.2 Prior to his role at CureGRIN, he worked as a newspaper reporter for a decade and later as a social media strategist for a large Canadian company.1 He holds a Bachelor's degree in Religious Studies from Queens University and a Master's in Journalism from Western University.1

In addition to his work at CureGRIN, McArthur is a published author and podcaster.2 He created an eight-part podcast series called "Unlocking Bryson's Brain" in partnership with the Canadian Broadcasting Corporation, which tells the story of his son Bryson, GRIN disorder, and their family's search for a cure.3

McArthur's goal is to find cures and therapies for people around the world suffering from single-gene disorders related to the GRIN1, GRIN2A, GRIN2B, and GRIN2D genes.1 He is known for his relentless pursuit of a cure and his respectful treatment of others.1 Under his leadership, CureGRIN has set ambitious fundraising goals and has been selected to be part of the Chan Zuckerberg Initiative's Rare As One program.1

Highlights

Sep 28 · CBC.ca
Province's elections commissioner under fire for lack of transparency - CBC.ca
Sep 1 · CBC.ca
Parents worried about the safety of their kids as students return to school today - CBC.ca

Related Questions

What inspired Keith McArthur to transition from journalism to leading the CureGRIN Foundation?
How has Keith McArthur's personal experience with GRIN disorder influenced his leadership style?
What are some of the biggest challenges Keith McArthur has faced while leading CureGRIN?
How does Keith McArthur's background in journalism benefit his role at CureGRIN?
What are the main goals of the CureGRIN Foundation under Keith McArthur's leadership?
Keith McArthur
Keith McArthur, photo 1
Keith McArthur, photo 2
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Location

North York, Ontario, Canada