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Lindsey Wahlstrom-Edwards

Patient Advocacy | Health Tech Partnerships

Lindsey Wahlstrom-Edwards is a seasoned professional with a passion for connecting the dots, devising strategies, and elevating projects to new heights. She holds a Master of Public Health (M.P.H.) in Epidemiology & Health Policy and Practice from Columbia University Mailman School of Public Health, a BA in International Relations, and a BS in Print Journalism, both from Boston University.

With a diverse background, Lindsey has held key roles in various organizations, including being the former Partnerships Lead at Sano Genetics, former Head of Partnerships and Patient Advocacy and former Head of Partnerships at Antidote.me, and former Director of Partnerships and Distribution at Antidote.me. She also has experience as a Project Manager at Columbia University School of Social Work, Teaching Assistant at Columbia University Mailman School of Public Health, Research Assistant at Yale Rudd Center for Food Policy and Obesity, Communications Manager at PCI Media Impact, Programs Coordinator at PCI Media Impact, Program/Development Associate at Publicolor, and Intern at Cultural Survival.

Highlights

Aug 14 · linkedin

One of the trickiest things we had to navigate during our stem cell transplant journey was the day the hospital dropped the mask mandate.

Several support staff had been hired during the pandemic and did not understand that though now optional in other units, masks and other protective measures were still in place for the 12 rooms in ours. We had a few beyond frustrating weeks while everyone got up to speed. The fact that the hospital-provided infection control signs were bright green didn't help. (The last I checked, green = go. 🤷‍♀️)

So Rona and her dad, Samtubia Edwards, made their own. The personalized signs were so effective that the infectious disease team shared them with other teams around the state.

Earlier this year, the child life and infectious disease teams at our hospital partnered to turn Rona's signs into posters that now hang permanently as a memorial in the transplant unit. We mustered up the courage to visit and see them ourselves earlier this week. As an added bonus, we got to hug some of our favorite nurses.

We are so grateful for how much the hospital staff continue to love and miss our girl. All else equal, that personal connection is why we chose that site.

Aug 13 · linkedin

Hey LinkedIn, I need your help!

I am beyond honored to give a main stage presentation at the Innovation Network Gathering in October. The topic of my talk is "What Death Might Teach Us About Better Research." I'll be covering six ideas for improving research for pediatric rare patients, based on the mix of my personal and professional experience. (Thank you for the nomination Bernadette Tosti!)

I've been asked by the organizers to nominate attendees who could help to implement some of these ideas into practice. Who would you suggest?

You can nominate yourself or someone you know to attend here: https://lnkd.in/ehsqx9m5

#raredisease #pediatricraredisease #innovation #clinicaltrials #research #healthtech

Lindsey Wahlstrom-Edwards
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Location

New York, New York, United States