Suggestions
Madeleine Warren
Market Access, Policy, Advocacy & Patient Engagement Consultant for Dialysis & Kidney MedTech/Pharma; Kidney Care UK Trustee; Motivational Speaker; Facilitator
Madeleine Warren is a professional with expertise in human resources and diversity consulting. She is the Director at Warren-Charnock Associates, a company based in the United Kingdom.2
Professional Background
Madeleine Warren has a diverse background in the following areas:
- Human Resources: She has experience in HR, particularly in the investment banking sector.2
- Talent and Diversity Consulting: Warren works as a freelance consultant specializing in talent management and diversity initiatives.2
- Medical Research: She has been involved in medical research projects, including the NightLife study, which focuses on clinical and cost-effectiveness in healthcare.15
Current Role
As the Director at Warren-Charnock Associates, Madeleine Warren likely oversees the company's operations and strategic direction. The firm appears to specialize in talent management and diversity consulting services.23
Additional Information
- Location: Madeleine Warren is based in Coventry, United Kingdom.2
- Previous Experience: She has worked with various organizations, including Stent Tek LTD, Quanta Fluid Solutions, and Goldman Sachs.4
- LinkedIn Profile: Her LinkedIn username is madeleine-warren-1281968b, which corresponds to her professional profile on the platform.2
Madeleine Warren's diverse experience in HR, consulting, and medical research suggests she brings a multifaceted approach to her role as Director at Warren-Charnock Associates.
Highlights
Patient centred care, #dialysis innovation, changing the status quo….. those of us who have worked in dialysis advocacy for any length of time hear these words a lot but true progress towards patient centricity is still painfully slow despite many continued efforts.
However I would just like to remind everyone that nocturnal home haemodialysis, utilising existing available machines alongside standard water purification, is immensely patient centric, the absolute gold standard of dialysis and is woefully underutilised as a modality. I am happy to answer questions about how it works in practice but in case you don’t know much about it here are the real life benefits 😊 (and yes I know not everybody is clinically suitable or wants to do it, but until everybody who COULD do it is given true choice and equal access I will not stop banging the drum. Let’s focus on the reasons why we should encourage it rather than trying to find reasons not to bother)
⭐️ treatments of 6+ hours whilst sleeping = ultra low UF rates, reducing heart and organ damage and eliminating the dialysis hangover (I get off the machine in the morning and go straight to the gym)
⭐️ 4-5 treatments per week (it’s flexible), no long dialysis gap so lower mortality risk, perfect blood chemistry including typically low phospate, far fewer or no dialysis symptoms such as nausea, itching, weakness, fatigue (I have zero symptoms even after 25 years of dialysing)
⭐️ minimal or no fluid and diet restrictions because of the above
⭐️ dramatic improvement and stabilisation of blood pressure issues and dizziness, extremely rare likelihood of “crashing” on or after dialysis
⭐️ more stable Hb, less anaemic episodes and often less EPO required (my Hb sits around 110 most of the time as long as iron levels are well managed; I give my own iron infusions at home)
⭐️ all your days and evenings are free with no travelling to the centre or time lost feeling terrible after treatment. I started dialysis whilst in school and since then the entirety of my time dialysing I’ve worked full time in an exciting and ambitious career which truly fulfils my potential, with lots of adventurous hobbies, instead of my life being dominated by a treatment schedule and debilitating side effects
⭐️ freedom! Control! Ability to feel happy, healthy and grateful for this life-saving technology whilst not simultaneously being slowly wiped out by it on a 3 x 4 hr regime
⭐️ dialysis has taught me to live every moment to the full and have such a healthy perspective on what really matters, entirely because I feel so well and free on nocturnal HHD
FYI I solo dialyse with a fistula.
I would love to share more over the next few weeks about practicalities and common fears/misconceptions about nocturnal HHD so please ask questions, share your worries or success stories or explain why you don’t actively offer it to your patients in the comments. Nocturnal can also be done in-centre of course
(This weekend’s hike plus my setup ❤️)
I posted this today on my Instagram (@queenofdialysis) but since I’m connected with so many kidney people on here thought I would share. It might be helpful if you support or care for people on dialysis too. It also applies even if you’re not on dialysis or living with a health condition!
I have had some messages recently from people on dialysis who are struggling. I know how hard it can be, especially when you feel you’re in limbo waiting for a transplant.
I can’t have a transplant, and if I’m honest I think that’s easier as I am not waiting for anything and my only choice therefore is to make the best of what I have here and now.
So my advice is to try and pretend you’re not waiting! Because as we know life can throw anything and everything at us, so our only guarantee is this day we have in front of us.
It makes me nervous when people say they can’t wait to get transplanted to get their life back because it’s based on so many assumptions. This is your life now too! It’s just maybe different from what you imagined.
You can do more on dialysis than you think. Back yourself, go for it and try not to find reasons to hold back from your ambitions. You might need to be creative and you’ll definitely need to be stubborn but you can do it 💪
⭐️ Things that might help⭐️
Explore home dialysis and exhaust every single possibility of doing it before you give up. The flexibility, improved clinical outcomes and quality of life that it will give you are transformational.
Get moving and get fit! If you can only walk 10 metres right now then do that everyday until you can walk 15 then 20 etc. Multiple times during my 25 years of dialysis and just prior to starting dialysis I was hospitalised for months, and couldn’t even walk down the road to the postbox (I have a clear memory of struggling with this!) But in 2018 I ran the London marathon.
Find something that you really really love doing and do it. As often as you possibly can - we need joy and purpose to stay positive and keep going despite adversity. My passions have evolved over the years and have included skydiving, riding horses, dancing and theatre. Currently doing a lot of singing, fitness and mentoring people. My work has always been a huge source of energy and fulfilment too. Whatever makes you happy, hold onto it and prioritise it!
#ckd #dialysis #bepresent
