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Philip Green
Phil Green is a Patient Advocate at I AM ALS, a patient-led community that provides support and resources to patients, caregivers, and loved ones affected by Amyotrophic Lateral Sclerosis (ALS).48 He is actively involved in various committees focused on outreach.6 Phil's LinkedIn username is philip-green-0605b3.11
Background and Diagnosis::
- In early 2018, Phil's wife noticed twitching in his triceps, which later spread to other parts of his body.1
- He was diagnosed with sporadic ALS on August 29, 2018, a neurodegenerative disease that affects nerve cells in the brain and spinal cord.1
- Phil participated in the Ice Bucket Challenge in 2014, four years before his ALS diagnosis.1
Advocacy and Activism::
- Phil is the co-chair for the clinical trials committee for I AM ALS and works to reform clinical ALS trials to be more patient-friendly and increase funding.1
- He is also a Patient Representative on the Clinical Trials Transformation Initiative's (CTTI) Steering Committee.10
- He collaborated with other clinical trial participants to advocate for expanded access, leading to significant changes in ALS trials.10
- Phil partnered with I AM ALS to create a connected community of people living with ALS.10
- He helped create a list of nine criteria for patient-centricity in ALS trials and publicly rated active studies.10
- He has been actively advising lawmakers, research teams, and other individuals with ALS.10
- Phil also serves on the Board of Directors for Team Gleason Foundation and the Leadership Council for Augie's Quest to Cure ALS.8
- He contacted Apple's director of accessibility to encourage the company to create products for the ALS community.1
I AM ALS::
- I AM ALS was co-founded by Brian Wallach and his wife Sandra Abrevaya after Brian was diagnosed with ALS in November 2017.3579
- The organization aims to empower people living with ALS to be part of finding a solution for their disease.3
- I AM ALS is working to revolutionize how ALS is cured by mobilizing patients and engaging advocates.79
- I AM ALS has contributed to increased federal funding for ALS research and the passing of the ACT for ALS in 2021, which enables people living with ALS to access promising investigational therapies.9
Additional Information::
- Phil Green previously worked at SRI International, where he established a medical ultrasound R&D group and worked on surgical technology R&D.2
- He played a role in the creation of Intuitive Surgical, Inc., which manufactures the da Vinci surgical system.2
- Green was awarded over 45 U.S. patents in medical diagnostic and surgical technologies.2
Highlights
Feb 12 · iamals.org
Home - I AM ALS - ALS is Relentless. So Are We!
Oct 14 · concussionfoundation.org
Phil Green's Fearless Fight Against ALS
Jan 17 · youtube.com
Phil Green - Update on Phil's ALS Journey - YouTube
Jan 1 · leverforchange.org
I AM ALS | leverforchange.org - Lever for Change
Oct 3 · rarediseases.org
I AM ALS - National Organization for Rare Disorders
