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Terry Merrill Wilcox
Chief Mission Officer at @PatientsRising | Advocate for equitable healthcare access & fighting discriminatory benefit design
Terry Merrill Wilcox is the Co-Founder and Chief Mission Officer of Patients Rising and Patients Rising Now, organizations dedicated to patient advocacy and healthcare access.12 With a background in production and multimedia storytelling, Wilcox has been instrumental in helping patients find their voice and become advocates for their own healthcare.1
Career Highlights
Leadership Roles:
- Co-Founder and CEO of Patients Rising Now (August 2022 - Present)
- Co-Founder and CEO of Patients Rising (August 2022 - Present)
- Previously served as Executive Director for both organizations
Prior Experience:
- Executive Director at Vital Options International (June 2014 - August 2015)
- Creative Director at Vital Options International (2008 - 2014)
Advocacy Work
Terry Wilcox is known for:
- Managing day-to-day operations to help patients gain access to proper treatment
- Building coalitions with survivors, caregivers, and medical professionals
- Writing opinion pieces on health policy and its impact on patients
- Presenting powerful personal patient narratives
Her work has been published in various outlets, including Fortune, the Boston Globe, The Hill, and Real Clear Health.1
Personal
Wilcox currently juggles roles as a part-time caregiver for her stepmom, who has Alzheimer's Disease, and her 88-year-old mother-in-law.3 This personal experience further informs her work in patient advocacy.
Impact
Under Wilcox's leadership, Patients Rising has grown to represent more than 100,000 chronic disease patients and caregivers nationwide.6 She has been a vocal advocate for patient rights, including supporting legislation to ban the use of Quality Adjusted Life Years (QALY) in federal programs.5
Terry Wilcox continues to be a prominent voice in the fight for equitable healthcare access and against discriminatory benefit design.14
Highlights
🎤 Exciting Event Today! 🎤
I'm thrilled to announce that I will be presenting an Advocacy 101 session to the Amyloidosis Community today from 6:00-6:40 PM EST.
This session is designed to empower individuals with the knowledge and tools they need to become effective advocates for themselves and others. We’ll cover the basics of advocacy, strategies for engaging with policymakers, and ways to amplify our voices to drive meaningful change.
Amyloidosis is a rare and often misunderstood condition, and effective advocacy is crucial to raising awareness, improving patient care, and securing essential resources and support. I look forward to connecting with the community, sharing insights, and learning from the experiences of others. Together, we can make a difference!
Join us and be part of this important conversation. Your voice matters!
#Advocacy101 #Amyloidosis #PatientAdvocacy #PatientsRising #Empowerment #HealthcareAdvocacy
Big Advantage Insurance is at it again denying seniors care. @Humana has denied a 89-year old stroke patient (my mother in law) the rehab she needs.
@HHSGov @CMSGov is this how you allow @Medicare Advantage plans to treat your seniors?
Looks like this is not Humana’s first victim …
https://lnkd.in/exv835iw
