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Casey McPherson

Songwriter at Riverbend Church

Highlights

Aug 27 · linkedin

I have been cleaning food off of chairs, hair, counter tops, staircase handrails, door knobs, and the floor for many years now. Rose will eat with a fork if I really make her every time. But sometimes, I forget about all I’m about to clean up and I just let her do her thing… (notice the fork being unused!!)

A cure for Rose means her ability to potentially learn to do things that are easy for us, but are hard for her. I think about how our treatment will affect her and children with this disease, and I get excited. Maybe eating food with her hands will just be a memory…

Help us get there by clicking here: https://rb.gy/5suiog

#tocurearose #hnrnph2 #raregeneticdisease

Aug 8 · linkedin

To feel the rush of pressing down on the piano keys, strings playing in harmony, and heart pumping rock and roll while I sing at the top of my register. Felt good. We rehearsed for our RoseFest / fleetwood mac / eagles night .. I’m excited for this weekend. My two favorites collide once again, genetic treatments for kids and rock and roll :)

#tocurearose #rosegala #rosefest #precisionmedicinesummit2024 #alpharev

Related Questions

What inspired Casey McPherson to transition from music to founding To Cure a Rose Foundation?
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Can you tell me more about the Rose Gala and Precision Medicine Summit?
How has Casey McPherson's daughter's diagnosis impacted his career and personal life?
Casey McPherson
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Experience

Songwriter at Riverbend Church

Location

Burbank, CA, United States